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06 April 2021

Urge NIH to Focus Research on Headache Disorders

 


We are sharing a request from AHDA to invite your networks to help with the asks from Headache on the Hill this week. This request and opportunity are ONLY for people who did NOT attend HOHNow that the Congressional Offices have heard our asks, we need them to hear from more constituents so they understand the importance of these requests. And, we need to act quickly. Offices must hear from folks by April 9th. Luckily, AHDA has made it super easy!

We invite you to reach out to your Members of Congress, before April 9th and advocate for their support of much-needed funding for research from the NIH HEAL Initiative specific to migraine and headache disorders and support for our veterans. You will get a link reminder at the completion of your initial requests.

Urge NIH to Focus Research on Headache Disorders

Expand Access to VA Headache Disorders Centers of Excellence (HCoE)

Click on the link to fill out your name and mailing address (this directs the email to the right Members). There is a pre-written communication you can send to offices. If you want, you can add 2 brief personal sentences to the email. 

Also, be sure to share posts from the @AHDAOrg Facebook and Twitter pages over the next few days.  

Background:

Headache Disorders cause extraordinary burden.

  • Migraine is the 2nd leading cause of US and global disability.
  • 60 million Americans have migraine.
  • Cluster headache, widely reputed to be the most severe pain that humans can experience, impacts 500,000 Americans.

NIH has neglected research on headache disorders.

  • Headache disorders are the least funded NIH research area among the most burdensome diseases
  • NIH has failed to prioritize programs for headache disorders research despite 17 Congressional statements “strongly” urging NIH to do so since 2009

The Ask:

Request $50m funding for NIH headache disorders research 

Once you complete this request, we highly encourage you to submit a second request regarding support for our veterans: Expand Access to VA Headache Disorders Centers of Excellence (HCoE). You will get a link reminder at the completion of your initial request. 

 

NOTE: If you attended HOH on March 23rd, no need to complete this request, but please forward on to friends and family!



Click the link below to log in and send your message:
https://www.votervoice.net/BroadcastLinks/zvL53CGADI2S9FUiZ2h7qw

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