21 June 2018

Shades for Migraine 2018

Have you ever wished for someone without migraine to walk a mile in your shoes? Living with the stigma of migraine only makes coping with the pain that much harder to deal with. It would be great if we could instantly make a non-believer understand exactly what migraine feels like.

The Association of Migraine Disorders created a great video on stigma for their Shades for Migraine campaign that I'd like to share with you. The goal of the campaign is to raise awareness and to create a viral buzz about a disease that affects 1 billion people worldwide. 

18 June 2018

A Week in the Life of a Woman with Chronic Migraine


This is a snapshot of what a week with an intractable migraine looks like. Summer is the worst season for me when it comes to managing chronic migraine. I am in pain practically every day. This video was taken last August. Here's the breakdown of each day:

17 June 2018

Pre-ICER Advocate Forum Panel Discussion #MigraineAccess #TrustPatients

Last week I was in Los Angeles to attend ICER’s CGRP Inhibitors as Prevention Treatments for Patients with Episodic and Chronic Migraine public meeting on Thursday. The day before, the Headache and Migraine Policy Forum (HMPF), Global Healthy Living Foundation (GHLF), and Coalition For Headache and Migraine Patients (CHAMP) held a patient centered forum where patient stories can be heard, share how the new CGRP therapies will change lives, and learn why access to treatment options matter. 

I was part of an incredible group of people who were chosen to participate in the discussion:

Paula Dumas, Founder & CEO of Migraine Again and producer of the Migraine World Summit 
Denis Tessier, Patient Advocate and Clinical Trial Participant
Sydney Kessel, Patient Advocate with Miles for Migraine and Clinical Trial Participant

And our wonderful moderator, Joe Coe, who is a migraine patient and serves as Director of Digital Content for GHLF. 


Watch the discussion below, and share using #MigraineAccess and #TrustPatients.


08 June 2018

Battle Balm #PainRelief #Sponsored


I received this item to review as part of my blog, 'The Migraine Diva'.  All opinions are my own and are in no way influenced by the company.


As many of you may know, I try to incorporate non-medicinal pain relief options into my pain management routine. If I can control, wind down or possible eradicate pain naturally I will take that route first. Part of having migraine is avoiding medication overuse headache (MOH). I am limited to using my pain medication to three days per week or once every 24 hours. This leads me to use them only when absolutely necessary and when other methods have failed.

25 May 2018

The Fay Farm Warming Muscle Rub #Sponsored

I received this item to review as part of the Chronic Illness Bloggers Network.

warming muscle rub

Living with fibromyalgia means sore and achy muscles and stiff joints. Especially first thing in the morning. My hands and feet hurt tremendously when I wake up. If I try to stand up and walk it feels like I am walking on nails. Between the extreme stiffness and pain, it can be unbearable. Stretching them out first usually helps some as well as massaging in some muscle easing oil. But I didn't have anything specifically for fibromyalgia.

18 May 2018

Will Insurance Companies Cover The New CGRP Drug?

50 state network, cgrp, global healthy living foundation, migraine



Yay! The FDA has approved Amgen and Novartis' CGRP preventive medication, Aimovig, for the prevention of migraine. But how accessible will this new medication be to patients? Will our insurance companies prevent us from even getting them? Global Healthy Living Foundation takes a look at some of the possible obstacles getting access to it. 


Read the article at ow.ly/oBSv30k4OJs


Join the 50-State Network to fight back against these insurance company practices. Let’s make sure everyone who needs these new treatments can get them. Click on the image below to get started!

50 state network


FDA Announces Approval of Aimovig For Migraine Prevention

aimovig, cgrp, migraine prevention, migraine, amgen, novartisNovartis today announced that the US Food and Drug Administration (FDA) has approved Aimovig™ (erenumab-aooe) for the preventive treatment of migraine in adults. Aimovig is a novel therapeutic approach as the first and only FDA-approved treatment specifically developed to prevent migraine by blocking the calcitonin gene-related peptide receptor (CGRP-R), which is believed to play a critical role in migraine. Aimovig 70 mg is self-administered once monthly via Amgen's device, the SureClick® autoinjector, and does not require a loading dose. Some patients may benefit from a dosage of 140 mg once monthly.

For more information on Aimovig™, including U.S. prescribing information, please visit www.aimovig.com.

UB Super - Plant-Based Protein Smoothies and Superfood Nutritional Shakes #Affiliate

ubsuper

For the past couple of months, my appetite has been almost non-existent. I barely eat except at dinner time, which is not healthy or helpful when living with migraine. Why my appetite has decreased so much is a mystery to me. I wind up feeling dizzy and lightheaded a lot because I am just not eating enough. That makes getting anything done more difficult and I physically feel worn down.

I needed to get good nutrition in me. I knew that I couldn't rely on myself to eat solid foods regularly and needed to find a proper protein shake to use in place of breakfast and lunch, two meals I normally cannot eat. I came across this superfood which has helped a lot of people with chronic illness.

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