Day four. I haven't slept since Monday night so I'm a pretty cranky zombie who is hating life and the world right now. Insomnia is the bastard child of migraine disease and fibromyalgia. I hate all three. Will tomorrow be better? Who knows...
I feel your pain. I have had a total of 6 hours sleep since Saturday morning, it is now Wednesday, 9:15 pm. I suffer Chronic Migraines with Cluster & Tension headache symptoms that only serve to make it worse. I also have Lupus. If I go a month with less than 16-17 days of migraine pain, that is a good month & that is sad. It gives me empathy for the millions of sufferers out there. There is another part of this that most people have no idea we go through & that is being called drug seekers when the pain it just to bad to deal with without going to the ER for a shot to stop the nausea & vomiting & to ease the pain. I hear this story over & over again from people I talk to who are trying to make sense of this horrible, painful disease. It is bad enough that we already beat ourselves up because once again, we have to be in a cool, dark & quiet room laying down, but to have some in the medical community place another load of guilt on us, quite frankly, adds to the problem. I have had to go through many drug tests before the doctor would even examine me, which is fine because they never find anything other than what I tell them I have taken at home, but it still adds that stigma not to mention prolonging the misery even longer. Most of the sufferers I have talked to are like us, they have another extremely painful disease that does nothing in helping to heal. Unfortunately, these other diseases are not ones that can be seen. If I had a dime for every time I have been told, "but you don't look sick", I would be wealthy. When I am able to look at a computer screen, I go in search, looking for something that might put an end to them. That is what lead me to this site tonight. I am wearing sunglasses to search, it is to painful to look into the light of the screen without them. I do hope that somehow, somewhere, you will find that doctor that can find a treatment to end or help your suffering. I am still looking. Please know, you are not alone in this suffering, we all know that, but while experiencing, it does make one feel alone. Bless you ma'am, Sincerely, Reese Lovern-Bishop
Thank you Reese. I really understand the terrible double-edged sword that is chronic migraine and pain treatment. We choose not to deal with ERs or urgent care facilities because it's not worth the drug seeker blanket that gets thrown over us many times.
I do have a working treatment plan. I have a neurostimulator that effectively helps control a good part of my chronic/intractable migraine. I am showing how life is like when I don't turn it on and how much better my quality of life is with it. Please, when you're up to it, look at my other videos and posts about my neurostimulator and hopefully it will spark some new hope for you.
I know I don't need to suffer as much now but it's extremely important for me to show others like me that there is a viable option other than Botox, nerve blocks or abortives (that don't work often). I also want to show everyone else the face of chronic migraine pain. I hope you feel better soon.
I feel your pain. I have had a total of 6 hours sleep since Saturday morning, it is now Wednesday, 9:15 pm. I suffer Chronic Migraines with Cluster & Tension headache symptoms that only serve to make it worse. I also have Lupus. If I go a month with less than 16-17 days of migraine pain, that is a good month & that is sad. It gives me empathy for the millions of sufferers out there. There is another part of this that most people have no idea we go through & that is being called drug seekers when the pain it just to bad to deal with without going to the ER for a shot to stop the nausea & vomiting & to ease the pain. I hear this story over & over again from people I talk to who are trying to make sense of this horrible, painful disease. It is bad enough that we already beat ourselves up because once again, we have to be in a cool, dark & quiet room laying down, but to have some in the medical community place another load of guilt on us, quite frankly, adds to the problem. I have had to go through many drug tests before the doctor would even examine me, which is fine because they never find anything other than what I tell them I have taken at home, but it still adds that stigma not to mention prolonging the misery even longer. Most of the sufferers I have talked to are like us, they have another extremely painful disease that does nothing in helping to heal. Unfortunately, these other diseases are not ones that can be seen. If I had a dime for every time I have been told, "but you don't look sick", I would be wealthy. When I am able to look at a computer screen, I go in search, looking for something that might put an end to them. That is what lead me to this site tonight. I am wearing sunglasses to search, it is to painful to look into the light of the screen without them. I do hope that somehow, somewhere, you will find that doctor that can find a treatment to end or help your suffering. I am still looking. Please know, you are not alone in this suffering, we all know that, but while experiencing, it does make one feel alone. Bless you ma'am, Sincerely, Reese Lovern-Bishop
ReplyDeleteThank you Reese. I really understand the terrible double-edged sword that is chronic migraine and pain treatment. We choose not to deal with ERs or urgent care facilities because it's not worth the drug seeker blanket that gets thrown over us many times.
ReplyDeleteI do have a working treatment plan. I have a neurostimulator that effectively helps control a good part of my chronic/intractable migraine. I am showing how life is like when I don't turn it on and how much better my quality of life is with it. Please, when you're up to it, look at my other videos and posts about my neurostimulator and hopefully it will spark some new hope for you.
I know I don't need to suffer as much now but it's extremely important for me to show others like me that there is a viable option other than Botox, nerve blocks or abortives (that don't work often). I also want to show everyone else the face of chronic migraine pain. I hope you feel better soon.